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Family Engagement/Parent Ed

UNDETECTED: LEARNING WHAT TO ASK & HOW TO PREVENT SUDDEN CARDIAC ARREST IN YOUTH

UNDETECTED: LEARNING WHAT TO ASK & HOW TO PREVENT SUDDEN CARDIAC ARREST IN YOUTH

A DVHS Family Shares Their Experience with Sudden Arrhythmia Death Syndrome
 

POST-PANEL UPDATE

 
We are updating our panel information with a link to the recording, for those who were unable to attend and for those who want to revisit the information provided by our presenters.  
 
Passcode: 0v2c$#??
 
If you are interested in more information, have questions, or need additional resources, you are welcome to contact our presenters directly.
 
Renee Maler 
renee@philosophypr.com
510.499.9746
 
Marcia Baker, M.S. Ed.
Program Director
Sudden Arrhythmia Death Syndromes (SADS) Foundation
Marcia@SADS.org
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Has your child
  • Ever complained of a “racing heart”?
  • Fainted during exercise, excitement, or when startled? 
  • Felt consistent or unusual chest pain and/or shortness of breath during exercise?
 
Does your family
  • Have a history of unexpected, unexplained sudden death under the age of 40?
  • Know about the genetic conditions that cause SADS? 
 
Have You Heard? 
Sudden Cardiac Arrest (SCA) claims more than 356,000 lives each year and is the third leading cause of death in the United States. More than 23,000 of those deaths are young people who appear healthy. Sudden Cardiac Arrest occurs in both athletes and non-athletes alike.
 
Jordan Maler (DVHS ‘11) was healthy, happy, and living and working in the Bay Area. Unfortunately, he died suddenly in November of 2019. 
 
Jordan was a member of the first four-year graduating class of DVHS, a core member of the Student Leadership Team, a National Honor Society Student, a member of the Wildcat Track Team, and an Intern for the Mayor’s office, among many other activities. After graduation, he attended and graduated from Cal Poly San Luis Obispo’s Orfalea School of Business. He was well into his career, with two years at Facebook and two years at Pinterest when he passed. As a high school student, Jordan complained of “a racing heart,” which his doctors and others dismissed as academic pressure-related anxiety. He was happy and seemingly healthy, but an undetected cardiac arrhythmia caused sudden cardiac arrest that took his life.
 
Please join us to learn more about the genetic conditions that cause Sudden Arrhythmic Death, or SADS. You’ll hear what a DVHS Alum family faced through this tragic, preventable loss, along with critical information from a Clinical Pediatric Cardiologist to best support parents' awareness on the signs and symptoms of this condition.
 
The SADS Foundation’s patient and family support program provides access to information, resources, research, and support to patients and families dealing with genetic conditions that cause sudden cardiac death in the young or who have lost a loved one sudden unexplained death. By providing this service, families receive information that helps them to make informed decisions. This program also provides a support network for the families through the Foundation and other families throughout the United States. Please go to SADS.org for more information.
 
About Our Presenters
Renee Maler, Jordan’s mom, is a Public Relations professional who has organized this informational night for students and parents in our community to raise awareness and help prevent another family from going through this tragic experience. Jordan and his older sister Amanda (Cal High ‘10) were born and raised in San Ramon, and the family lived in the community for nearly 30 years.
 
Dr. Prince Kannankeril is a Clinical Pediatric Cardiologist/Electrophysiologist at Vanderbilt Children’s Hospital with formal training in clinical/translational research. His research program investigates genetic variants and their contribution to cardiovascular disease and clinical outcomes (personalized medicine). He is a Professor of Pediatrics (Cardiology), with faculty appointments in the Vanderbilt Genetics Institute and the Vanderbilt Center for Arrhythmia Research and Therapeutics. He also serves as Director of Clinical/Translational Research for the Division of Pediatric Cardiology at Vanderbilt University in Nashville, Tennessee.  
 
Marcia Baker is Program Director for the SADS Foundation, whose mission is to save lives and support the families of children and adults who are genetically predisposed to sudden death due to heart rhythm abnormalities. She joined the SADS Foundation Staff Team in October 2018 as Program Director, following a 30+ year career in management with two other “heart” nonprofit associations. She previously held positions with the American Heart Association at the national and affiliate levels and Mended Hearts. Marcia has an M.S. in Health Education from Southern Illinois University, Carbondale, Illinois, and a B.S. in Music Education from the University of Missouri, Columbia.
P-EBT FOOD BENEFITS

P-EBT FOOD BENEFITS

P-EBT Food Benefits! Update your Address with your School today!
foodbenefits
The Pandemic EBT (P-EBT) program gives food benefits to children. Your child may get P-EBT if they qualify for free or reduced-price meals at school. The State of California wants to help your child get these food benefits. Using P-EBT will not hurt your immigration status. using P-EBT does not create a public charge.
 
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